Hi There Masymay
Thankyou so much for writing on my blog. I am so so sorry to hear your ordeal, it made me quite upset to hear what you have been going through.
About 4 years ago I was where you are, but not as severe...I too couldnt open my mouth properly or clean my teeth properly and still have some in the corner of my mouth, as they quite difficult to remove from there without the scarring. I know how you are feeling I too became a recluse in my house and distanced myself from people. I have had alot of people from Canada contact me, you are not alone over there I think Canada has been one of the worst hit with Dermalive. What have you been doing to treat the lumps? I suggest stay away from the steroid injections they make it alot worse. I really feel you need to see another Plastic Reconstructive surgeon to help you, somene who usually deals with tumours of the face and people who have been through serious accidents who are use to reconstructiving faces, rather than someone who is a Plastic surgeon who does face lifts nose jobs etc. Unfortunately I too am not fixed completely yet and have more to go. I had a fat transfer to my lips and it worked ok but I still have lumps there, which I have been trialling a new technique where the doctor is lasering each nodule using a fibre optic cable and a certain type of laser and heating the product up inside, you can smell the plastic burning when he gets it, and then the plastic melts out or comes like a puss a few days later. Some of the more stubborn nodules it has really helped and they have either dissapeared or become smaller and others they have become a little softer with not a lot of change...its all trial and error. Take care Masymay email me if there is anything else I can help you with x Penelope
