Hi There
I wanted to give an update as I have been receiving a few emails of late asking many questions.

For the last two years I have had five surgeries under full anaesthetic removing around eight granulomas at a time, some have grown back after surgery but after two or three removals they have settled down and stopped growing. I have one more surgery to go and then I will be having fat transfer to reconstruct my lips.My lips are looking the best they have looked in years thanks to a great surgeon.

The best advice I can give anyone out there looking for help with this terrible product, is you have to get the product out. Your body will continue to react until it comes out. Your body realises its a foreign material so it will do anything it can to try and push out, so removal is the only option.

You need to find yourself the best Plastic AND Reconstructive surgeon you can find, as they are the most highly skilled and trained in the industry. Don't waste time seeing a Dermatologist or Cosmetic surgeon.

Some Important Points:

KENACORT steroid injections DON'T WORK.....they cause the product to react more and cause the good surrounding tissue to die leaving you with potholes in your skin...(i know from personal experience)

Laser Light treatments such as IPL cause the product to react also so stay away from any treatment like this.

I found that anything with high histamine levels such as red wine can make the granulomas itchy and aggravate them further, so try to avoid it

Please do not hesitate to contact me on my email if you have anymore questions,
or if you would like to share your experiences please do I would love to hear what others have found and maybe we can all help each other out...
Kin regards
xx Penelope

Welcome

Welcome to my Blog.

I am from Australia and I have been battling Dermalive granulomas for 4 years now in my lips.
I have had 45 steroid injections, laser and light therapy to draw the lumps out, and 7 lots of surgeries to remove over 15 lumps so far, with many more surgeries to come.
I can see there are many of us going through this around the world and wanted to create a network so we can help each other out in finding a cure for this.
I have had some bad experiences as I am sure many of you have, and have found also some amazing people who have helped me on the way.
In particular I am looking for other Australians who have gone through this and would like to connect with them. Maybe together we can fight this injustice as they are in countries around the world.
I would like to welcome anyone from around the world to share their stories and experiences also.Thankyou for sharing in advance xx